Between home visits to see my brother (we were there 6 times in the span of two years) we were quite disconnected with what was going on with him. It was quite difficult to retrieve information from everyone.
Understandably the communication with my brother and his family was harder. And so we got bits of information from a collection of sources, at times it was hard to piece them together.
Later it became harder to get my brother on the phone. He did not have much strength to talk and we also assumed that there were times when it was hard for him to hear or understand.
That situation led to us feeling a bit isolated from the current situation. Many times we had to wait for news to come to us, without actually knowing when it would come and what sort of news they'll be.
Usually we would get a new piece of information once a week, but the days before always felt really long, especially during the last couple of months.
We of course tried to keep our optimism and to always have a new flight ticket ready for our next visit.
But in between. There was a lot of waiting.